{
  "$type": "site.standard.document",
  "bskyPostRef": {
    "cid": "bafyreicgpanggg7b2ggyt5fb4rabuujxpdqeltxra4swvaffz2wyfv3nve",
    "uri": "at://did:plc:xc32dedgv3ceunwz2nrseso4/app.bsky.feed.post/3mom7s4wfryc2"
  },
  "path": "/x/2ed885088c425754?ref=rss",
  "publishedAt": "2026-06-19T01:42:57.000Z",
  "site": "https://upstract.com",
  "textContent": "The FDA has been in hot water for over a year — blocking rare disease, cancer, and other treatments from patients who are running out of time. That leadership is now gone. Vinay Prasad resigned as CBER director, and Commissioner Marty Makary was fired. But what remains is an agency in chaos that…",
  "title": "The FDA's Advisory Committees Are Failing Rare Disease Patients"
}