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  "path": "/t/how-do-i-compellingly-advocate-for-my-privacy-with-doctors-and-other-healthcare-professionals/38299?page=2#post_27",
  "publishedAt": "2026-06-06T01:50:06.000Z",
  "site": "https://discuss.privacyguides.net",
  "textContent": "PurpleDime:\n\n> I explained to the receptionist that I didn’t want my medical history shared with third parties. She assured me that it wasn’t, which is when I pointed out that they use Gmail. She didn’t seem to understand, so I had to spell it out to her, and she replied that she/they (the practice) had nothing to hide from Google.\n\nOMG what a  response from the practice.\n\nPurpleDime:\n\n> When it comes to consent, you shouldn’t have to explain yourself. If you don’t want to have sex, you don’t need to give an explanation. It should be the same with privacy.\n\nPurpleDime:\n\n> However, because of the current privacy-invasive status quo and the fact that most people do not say no, I will have to justify myself.\n\nI feel exactly the same way. People are being compelled to justify their own human rights, and seeing most other people comply with the status quo makes me feel lonely.\n\nPurpleDime:\n\n> Bumbashirovich:\n>\n>> It’s better to keep quiet in such situations. You might be misunderstood and referred to a psychiatrist.\n>\n> I don’t understand why you’re saying that.\n>\n> Why should I stay silent and not advocate for myself?\n>  Why should I comply with surveillance capitalism?\n\nIt could be just a joke but it could be interpreted as advice for your personal safety. Referring someone to the mental health system is an act of inciting violence (detainment and involuntary “treatment”) against said person, and in a clinical setting there is some possibility that threat is carried out.\n\nPurpleDime:\n\n> WhinyHamletPayer:\n>\n>> It makes life quite difficult if you take a hard line against anyone that doesn’t meet your privacy threshold\n>\n> I hear you, but it’s not just about my privacy standards, and I would argue that in this case it’s not primarily about them either. It’s about the law and the confidentiality rules of medical practice.\n\nIn addition to it not being about the individual patient or the practice, or even laws, I would say it’s about reality. Involving Google, WhatsApp or other third parties compromises doctor/patient confidentiality. For vulnerable people or people with sensitive medical conditions, a compromise that exposes evidence of a sensitive medical condition or evidence of appointments at specialized clinics could lead to real-world harms.\n\nPurpleDime:\n\n> WhinyHamletPayer:\n>\n>> You can also request that AI not be used for the transcription of your appointments (something I’ve noticed with my doctors).\n>\n> Yes, I have done that before with another doctor, and I am still waiting to hear back from her.\n>  And again, maybe I am too skeptical, but I am not convinced a doctor who uses AI transcription for every patient will be willing to abstain for one patient. That doesn’t mean it’s not worth trying, though.\n\nI did this a while ago. I asked for a paper consent form. I filled it out but, thinking WTF when reading the consent text, didn’t sign the consent. I handed the form back. They noticed I didn’t sign it, and and handed the form back to me. I said I’m unsure about the content of the consent part. They said I can say “no” to where there are yes/no options. I used horizontal lines to strike out consent to AI transcription and sharing of anonymized data for non-medical purposes (there were no yes/no options), inserted a clause that expressly forbids such, then signed it. They accepted it. Whether they will implement my refusals or simply ignore them (and do AI transcription and data sharing without my knowledge and consent) is another matter entirely and I may never find out.\n\nWhile the above is not the making of a compelling argument to medical institutions, it does signal a refusal to comply with the status quo.\n\nI don’t know what AI transcription even looks like. Can anyone tell me, does the doctor type notes into their computer, or is the entire consultation audio recorded?",
  "title": "How do I compellingly advocate for my privacy with doctors and other healthcare professionals?"
}