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  "path": "/news/health/man-butterfly-syndrome-epidermolysis-bullosa-explained-377263-20260323",
  "publishedAt": "2026-03-23T17:38:54.477Z",
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  "textContent": "Shane DiGiovanna lives with a condition that makes him 'old' due to its life expectancy",
  "title": "Man born with ‘butterfly syndrome’ reveals symptoms of ‘worst disease you’ve never heard of’",
  "updatedAt": "2026-03-23T15:41:06.132Z"
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