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  "path": "/news/northern-ireland/ive-lived-very-rare-disease-33367131",
  "publishedAt": "2026-02-05T22:36:55.000Z",
  "site": "https://www.belfastlive.co.uk",
  "tags": [
    "Northern Ireland",
    "Ballymena",
    "Co Antrim",
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    "Fitness and wellbeing",
    "Antrim",
    "Royal Victoria Hospital",
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  "textContent": "She feels lucky her condition was picked up as sadly some people aren’t that lucky",
  "title": "'I've lived with this very rare disease since I was a toddler so my childhood was very different'"
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