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  "path": "/2026/06/19/child-influencer-who-inspired-10m-fundraiser-for-rare-disease-research-dies-aged-five/",
  "publishedAt": "2026-06-19T11:31:33.000Z",
  "site": "https://needtoknow.co.uk",
  "tags": [
    "World",
    "child",
    "death",
    "Influencer",
    "Netherlands",
    "Rare condition",
    "shocking",
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    "world news"
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  "textContent": "A five-year-old boy with a rare brain disease who became the face of a Dutch fundraising campaign has died at home in his mother's arms - his family helped raise €11m for research.</p>",
  "title": "‘Child influencer’ who inspired £10m fundraiser for rare disease research dies aged five"
}